Local fundraisers benefit Progeria research - 13abc.com Toledo (OH) News, Weather and Sports

Local fundraisers benefit Progeria research

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  • Tuesday, July 24 2012 6:24 PM EDT2012-07-24 22:24:00 GMT
    Imagine if your child was sick and there was a medicine that could make him or her better, but you weren't allowed to give it to them. That's what two northwest Ohio families are going through right now.
    The Halkos of Monclova and the Kudzias of Whitehouse wait for the FDA to give the go ahead on a new experimental drug for their children.  9-year-old Kaylee Halko and 2-year-old Carly Kudzia have the accelerated aging disease Progeria.

July 25
Chuck E. Cheese Fundraiser
Airport Highway location
10 am- 10 pm
15 percent of all profits for the entire day will go to Progeria Research Foundation.  Kaylee and Carly will stop by around dinner time to say hello and visit.

August 2
Freeze Daddy's
Monclova
5-9 p.m.
Kaylee will help at the window dishing out ice cream.  20 percent of sales from 5 to 9 pm will be donated to Progeria Research Foundation

Raffle tickets available for "Carly's Cart"
Refurbished, fully customized golf cart.
Raffle tickets $10
All proceeds to Progeria Research Foundation
Winner announced at Swanton Corn Festival August 18th
Need not be present to win
Info: teamcarlyq.com or Carly-q on facebook

August 18
Progeria Playland at Maumee Summer Fair
Carnival games, train rides, maybe even a dunk tank!
Progeria Research Foundation fundraiser

September 28
Carly's Party
The Pinnacle, Maumee
Silent Auction, great food and fun
Progeria Research Foundation fundraiser

October 13th
Kaylee's Course
Monclova Primary School
5k walk/run, silent auction, kids activities and more   
Progeria Research Foundation fundraiser

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