Butterfly children have heartbreaking rare skin disorder
They are called "Butterfly Children" They have a rare skin disorder called Epidermolysis Bullosa or EB. It causes their skin to be so fragile it tears like tissue paper blistering and scarring to the touch. It reportedly affects one in every one-million children born. There is no known cure for this genetic disorder.
Tiny Archer Brazeau from Toledo was born one month ago with the condition when he was rushed to Mott Children's Hospital in Ann Arbor. Doctors have wrapped his hands and feet in protective bandages and laid him on a burn blanket in the NICU because it has the least amount of friction against his skin. His parents Nicki and Kirk are devastated but hopeful about Archer's future. They're hoping to enroll him in clinical trials that use gene therapy to treat the condition.
Friends and family of the Brazeau's have set up a Go Fund Me page to help pay for medical bills for baby Archer. Kirk is the Director of the Toledo Celtic's Soccer team and his players have printed t-shirts and made bracelets to support the family.